I want to include a mothers experience of being in a situation where their child is a type one diabetic. I was able to acquire an original poem by my own mother, about the consistent struggles of living with diabetes.
“Iv’e been quiet for over a year now. You don’t know my story. You don’t fight this fight with me. You don’t stay up all night with me. You don’t hear the sounds every electronic device in the house makes because of the CGM. You don’t count carbs with me. You don’t do the mathematical equations with me. You don’t give the insulin injections with me. You don’t buy the insulin that the insurance doesn’t cover with me. You don’t work 2 jobs to ensure you can purchase what insurance doesn’t cover with me. You don’t see the high’s. You don’t see the low’s. Or all in between. You don’t watch my daughter struggle with this invisible disease. You don’t know what it is like to live with T1D [Type one diabetes]. It is a constant struggle of you vs you, just to stay alive. You don’t know my story…”